Wednesday, July 23, 2014

Together we can, Together we will!

Happy Summer! 
Unless you live in Arizona, then you are melting right along with us at 115 degrees today!
We have been swimming almost every day to try to stay cool, and Lucy has become quite a little fish.  She has graduated from her first level of swim class, and just comes alive in the water.  
Wanted to share an amazing video made by a friend, Mrs. Gina Jay, founder of One Hip World.  Lucy and Lily are in it, and it's amazing!  I will warn you, it's a total tear jerker… to see all of these sweet little faces, and know the suffering that they have been through… it just reminds us of why we need to keep fighting and why we spread awareness about hip dysplasia.  
Here is the video: 



Pretty cool, huh?!  
Since I haven't posted for awhile, I thought I should tell you that we are about to wrap up 2 years of physical therapy.  Wrap up, as in go to monthly or bi-monthly visits.  Not sure what we will do every Monday morning without our Miss Hilary!

Lucy also was referred for custom orthotics.  Her previous inserts weren't working with her severe ankle pronation.  We were referred to a wonderful place, Orthotic Specialists here in Phoenix.  Ms. Barb, the owner, is truly a gift.  A gift to her industry, a gift to parents, and a gift to children.  Meeting a person like her, who has so much love and passion for what she does, truly restored my faith in people.  A real blessing.




Barb taking a cast mold of her foot.  You would think she would be afraid of a cast, but no.  She thought it was a princess slipper!

Ms. Barb.  You're the bomb!

The reason she needs custom orthotics.  This is after a year of wearing arch supports.  Her ankles just roll in :-(

Our new HIP shirts!!! (The band-aid on her chin…all drama)
Order your cool shirts HERE

YAY for my baby!  She graduated swim!

Watching Barb in the lab trimming them down to fit
Here they are… HIGH arch on these puppies…
She chose blue since blue is 'my favorite color EVER!'
On our little vacation to the mountains!
Her dream has come true
Best. Day. Ever.  Ariel is her favorite!
My two slices of perfection
Doesn't everyone wear a crown to physical therapy?!


I also have to share.  On a hip group that I am not very active on, someone posted that they found a great blog with tons of info on DDH.  Guess who!?  That's right… yours truly!  It made my day to see that.  Hopefully I am helping someone out there!

Enjoy the rest of your summer!

xoxo

Karen and L squared!

Monday, May 19, 2014

1 Amazing Year!

Hello from sunny Arizona!  
We are almost hitting 100 degrees already, and it's official.
It's SUMMERTIME!  
Usually I get ill at the thought of facing another summer, but we have had a super busy year, so we are ready to chill out a little bit, enjoy swimming and splash pads, and go on plenty of ice cream dates to cool off. :)
Tomorrow is May 20.  Exactly 1 year ago my Lucy had her Dega Pelvic Osteotomy.  If you aren't sure what that means, here's a link to describe her surgery.  (YIKES!)
It doesn't feel like a year ago at all… It feels like a really, REALLY long time ago.  I guess that's because Lucy is amazing me every single day, and I honestly don't feel like I have as much of the constant worry that I used to.  (Notice I said 'as much.'  There's still a ton of anxiety and worry every single day, but it's better.)
So, what have we been up to?!  
Lucy just completed her first year of preschool.  It was probably the best decision we have ever made, putting her in this school.  She has the nicest friends, who have the nicest parents… therefore we are all going to be friends for life!  Her class put on a Mother's Day tea party for all the moms, and sang us a few songs, and it took every ounce of my strength not to bawl the whole time.  Seeing her sing, 'I LOVE MOMMY' made my heart burst with pride and joy. 
HERE IT IS!!!  Cutest ever...
We still are attending physical therapy, but will soon be done, and on a monitoring basis.  Lucy still… STILL has trouble going up a stair without holding on, with her left leg.  It's crazy how much muscle strength she is still working on gaining back.  
We have her enrolled in swim class, and it's been really great for her!  Our physical therapist said she gets a lot of propreoceptive input in the water, so she can really go to town!  I watch her swim every week, and I can't believe that she is the kid in the water… she looks like a 6 year old in there!  Again… PROUD!!! So proud of this girl.
The difference one year has made… 
I see all of these new parents on our hip group, and my heart really goes out to them… however, I am so happy to share our story and remind them that things will get better… I feel like my Lucy is a success story, and will continue to be a success story.  
So, with that said, the babes are waking up…
I just wanted to do a ONE YEAR post and say this:

#TAKETHATHIPDYSPLASIA




My little fish!

Buddies for life!

You know, just hanging out playing FROZEN!

Did you know?!  Anna and Elsa live here...

Celebration lunch after the last day of school

PURE JOY

If there is an hour that goes by that she isn't dressed up and singing LET IT GO, it's a miracle



Saying goodbye to our favorite doctor and the best surgeon in the world… Thank you Dr. Segal for treating Lucy like she is your own!  We love you!!!! 

At Disney on Ice….



Monday, April 7, 2014

Our Dr. Segal

Hi friends,

This post is one that I didn't think I would have to write.  One that I was hoping never to write.
Our beloved Dr. Lee Segal, Lucy's ortho surgeon, has left Phoenix Children's Hospital.  He is headed to the University of Wisconsin in Madison.
My first response was NO!!!!!!!!!!!!  No way could this happen!  Then, I calmed down a little, and began to realize that God sent Dr. Segal to us when we needed him most.  Dr. Segal was Lucy's angel.  I have no doubt! 

For those who don't remember, let me tell you how we found him.
We had our first meeting with an ortho at PCH. (Not Dr. S) He seemed like a great doctor, but wasn't a great match for us.  I was determined to get a 2nd, 3rd, 4th opinion, whatever it took.  I went home, did some research online, and saw Dr. Segal's picture and bio.  With the 'Director of Orthopedics' title, who wouldn't want him?!  I mean, that must mean he's the best, right?!  So I called.  My heart sank when the receptionist said, 'he doesn't have any appointments until May.'  (It was January.)  Great… I was really hoping to see him.  
She did give me the name of another ortho, and said he could see me in the Mesa clinic location of PCH on an upcoming Wednesday.  
We anticipated this appointment, hoping and praying that this doctor would be the right one.  If this doctor wasn't going to work, we would be heading to California for some other opinions.  Heck- I would have flown to the ends of the earth to find the right surgeon.

We get to the PCH clinic, and upon check-in, the receptionist told us, 'that doctor isn't here today.  He doesn't work here on Wednesdays.'  For those of you who know me, you know that I would have not made a mistake on the appointment day and time.  I even had a voicemail reminder call!  I got teary eyed, and told my husband, 'let's just leave.  This isn't meant to be… we need to start checking out other hospitals and doctors…'  That may not sound reasonable to some, but to very confused and scared parents, overreaction is a daily occurrence.  
Sure enough, the receptionist came to us as we were headed out the door and said, 'Wait.  We have one ortho here today, and he is overbooked.  He just got here, so let me see if he could see you.'  She came back after a few minutes and said, 'yes.  Come on back, he will be right in.'

A few minutes later, the door opened, and it was Dr. Segal.  I recognized his photo from the profiles page on the hospital's website.  I said, 'you're the doctor I have wanted all along.'  He looked at me and said, 'why?!  Why would you want me?!'  and laughed.  I knew right then, this is our doctor.  He was so normal.
He spent close to an hour with us.  He explained things.  He did an exam on Lucy. He got down on Lucy's level and would play with her.  He treated her like a little girl, not just his first patient of the day. He comforted us.  He gave us a 'road map' of what we can expect in the future.  
We left the appointment with our beautiful 12 month old daughter, and I told Aaron, 'As much as I don't want to do this, this is the right doctor.'  He agreed.  It was a strange feeling we had leaving that appointment...strange in a good way.  Like a big, warm feeling of comfort is the only way I can explain it.  
  
Since that day, Dr. Segal has never disappointed us.  

Who knew that when we showed up for an appointment on the wrong day, that we would be so lucky to get him?!  
Prayer, my friends! Prayer.  We prayed and prayed and spent so many nights crying our eyes out, hoping that we would find some comfort in this awful diagnosis.  I remember saying, 'God, please. Just give us a sign.  Give us a sign that Lucy will be okay.'  Dr. Segal was our sign. 
Dr. Segal entered our lives with everything we could ask for, and more.  Expertise, love, kindness, understanding, professionalism… I could go on for days.  He walked this journey with us, as a member of our family, not just a doctor.  He gave my Lucy the opportunity to have a normal life.  
I will never forget when we were just about to send Lucy off with him for her first surgery… Feb. 16, 2012.  I was laying with her in the pre-op bed, and just holding her, and studying her little legs and tummy and thinking about how I am going to miss those things so much!  To say I was upset doesn't quite cover it.  I was a total wreck.  Dr. S said to us in his calm tone, 'Guys.  I will take care of her like she is my own.'  Can you imagine what that meant to us?  Confused, scared, anxious parents in a pre-surgery room with their little baby about to be put in a body cast. 
It meant the world.  It meant the world because we knew that he meant it.
He is our partner through this, not just our doctor.


Having him be Lucy's doctor is probably one of the best things that has happened to us.  Not only did we get the best doctor, we have a member of our family for life. (His beautiful wife, too!)  Truly, the kindest and most caring people I have ever met.

So, for those of you who are in the Wisconsin area and needing an ortho, don't hesitate. You will write me and thank me for the referral. :)
For those who are doctors and need to learn from someone, don't wait.  He will lead by example, and anyone who becomes half the doctor he is, consider yourself lucky.
For those who want the best, Dr. Segal is the one.  He WILL take care of your child like he/she is his own.  

Be sure to tell him, 'Lucy says hi.'

Where do we go now?  I don't know.  Honestly… our next appointment isn't until January 2014, so I have plenty of time to interview some recommended orthos and pray for someone as amazing as Dr. Segal.  (Although I don't think anyone will ever compare.) 
Would we travel to see him?  Absolutely.  It won't be November-March, but after that… heck yes.  Only the BEST for my baby!



(here he is with M & M on his cap. Long story, but Lucy's first pelvic osteotomy was actually cancelled due to her sneaking an M & M.  So at her 2nd appointment, he showed up in pre-op with this on.  We were cracking up.)


Thank-you God for leading us to our angel.  

"People pay the doctor for his trouble; for his kindness they still remain in his debt." - Seneca









Wednesday, January 29, 2014

Dear Dr. OZ...

I got the idea from a friend…
I couldn't wait to start!
What are we doing. you ask?

We are starting a petition to hopefully get the attention of the national media!

THE DOCTORS show and DR. OZ!

I have started a petition on change.org that is asking (begging, really) for these doctors to do a segment on DDH.
The numbers of infants born with hip instability is astounding.  1 in 1000!
So why isn't there more awareness and info out there?  Good question… BUT… we are standing up and going to do something!  Being in the DDH world for the last 2 years, I have heard some pretty scary stuff… I have also seen some amazing things.  It's time to stand up and do this…

As you know, I have been asked to be the parent/child advocate for One Hip World.
I am so thrilled to be a small part of something SO big and so great.  I am truly honored.

So Dr. Oz…. if you are reading. WE NEED YOU.  WE NEED YOUR HELP.
Pediatricians are missing hip dysplasia left and right.
Parents are confused on what to do.  Parents are scared out of their minds.
There is very little info out there.
Our children are suffering and us parents are overwhelmed.

My daughter, Lucy, had surgery and a body cast at 13 months.  She was in her body cast for 4 months, totally immobile.  After that, she was in a brace for 6 months!
Recently, in May of 2013, she had a pelvic osteotomy.  Wheelchair for 6 more weeks.

When DDH is picked up via ultrasound at birth-6 weeks, a pavlik harness can be used, therefore possibly not needing any surgery… We can only wonder 'what could have been…'  Maybe our lives wouldn't have been surgeries, casts, tears, and heartache… Maybe… just maybe, by doing a show on DDH, we can help prevent this from happening to more children.

Parents like us have started online support groups via Facebook, and One Hip World.
We need more.
We need national attention to DDH.

Please help us!


Love,

Karen
onehipworldkaren@gmail.com

Lucy's mom

:)

LINK to our petition:
(Please sign and share!!!)
DDH PETITION FOR DR. OZ and THE DOCTORS




Wednesday, January 15, 2014

X-ray day



Lucy is officially a THREE year old!
Happy New Year!
I haven't kept up on my blog at all. 
Guess why?!  I have a baby who is crawling all over, and a now 3 year old who has more energy than I thought was possible!  I am actually excited- SUPER excited, actually, to be sitting down and writing this post.
Today was x-rays for both girls.  Lily's 1 year precautionary x-ray and Lucy's 6 month post surgery x-ray.  Talk about nerves!!!  I have had nightmares of both girls needing hip surgery and being in spica casts at the same time.  
Thankfully, all seems to be going well... at least for now.

We get called back at PCH, and I take Lily in the x-ray room.  She lays on the table and is screaming bloody murder.  She has recently developed 'stranger danger' so this was rough for her.
Aaron then took Lucy back, and he told me, 'she's so cute. She says CHEESE when they take the x-ray.'  I remember her doing that last time, with tears running down her eyes.  So sweet and innocent. I hear Lucy leaving the x-ray room with new friends, 'BYE GUYS!  Thanks for the picture of my hips!'  You'd think after all these doctor visits, surgeries and so on, she would be scared of these appointments.  Nope.  She loves it.  She adores Dr. Segal and was looking forward to seeing him all week.  If a kid at school falls down, she immediately tells them, 'Oh no! You need Dr. Segal!'
Dr. S comes in the room, and talks for a bit, and then the computer doesn't work.  Great.  So he tells me to come to his computer and see the film.  We walked down the hall and I told him I am really nervous and he said, 'it's FINE, Karen!'  I said, 'are you just saying that or did you peek at the film already?!"  He just smiles and rolls his eyes... :-) 
There it was.  The x-ray.  I could immediately see the bone growth.  
Amazing.
Where Dr. S pointed out awhile ago that cartilage 'should' grow--- cartilage DID grow. It's now bone and growing over the femur.  He pointed out where the bone graft was, and said it's looking good.  
He did say we aren't ever 'out of the woods.'  We are, however, going to yearly x-rays... (That's a huge deal- haven't had a year break from this EVER!)  
Lily's x-rays look good.  He did say he wants to follow up with Lily at age 2 again- just to be sure.  He's over cautious, which we so appreciate.
I got tears in my eyes looking at Lucy's x-ray.  It's like all the hell we have been through, all the tears, all the horror, all the pain, all the appointments... this is what we have been waiting and praying for.  A good x-ray.  Finally.  
Thank You, Lord! 
 I am beyond thrilled today.  :-)
We left the appointment and I told Lucy that I would take her and sissy for a nice lunch.  She smiled and said, 'I had a good x-ray, mommy!'  That melts my heart.  I said, 'yes you did, baby!  Now where should we go for lunch.'  "McDonalds!!! YAH!'  
Oh great... So.... we called Grandma and Grandpa and they joined us at good ol' Mickie D's for lunch.  Lucy loves to play there... So our celebration lunch was all Lucy could ever dream of.  Chicken nuggets, fries and a chocolate sundae. :)

Recently, Lucy has been able to run.  First time in her life.  She always could walk fast, but the other day, she ran.  PROUD MOMENT!
She jumps on trampolines with both feet off the ground.  She's excelling in school and in PT.  She has the most wonderful little group of friends.  Nicest teachers.  We are so lucky. 
Now, her gait, it isn't normal.  It's hard to explain, but her walk is very 'clompy.'  She always favors the right (good) leg.  Stairs are hard for her.  BUT, there has been improvement, so we are going to keep working!

It's almost been 2 years since Lucy's first surgery.  I look back at these last 2 years and am just so thankful that we are where we are today.  We did it.  We made it through multiple surgeries.  We are currently kicking DDH in the butt.  We are making progress.  I STILL can't talk about some things without crying.  It's too much sometimes.  But.. it's made us who we are, I guess... we've learned a lot from this crappy journey...
All of the parent's out there facing this... don't ever stop praying.  Don't ever give up hope, even though I felt like I did many times.  It took this last year for me to finally sit back a little and really take the attitude of 'God is in control, what will be will be.'  It's a hard way to look at things, but I worried myself sick most days, and I wasn't going to continue to let hip dysplasia ruin our lives!  
Screw You HIP DYSPLASIA!  

I am happy.
So happy.  So thankful.  Thankful for our amazing surgeon, Dr. Lee Segal.  We love him to pieces.  Thankful for our friends and family. Thankful for Miss Hilary, the best physical therapist in the world.
Thankful to be the mom of these two little monkeys that light up my world!

Quick story.  I went in tonight to check on Lucy sleeping.  (I do this with both girls every night.)  I just kneeled by her bed and looked at her.  She's amazing... truly.  Her little spirit lights up every room.  I got tears in my eyes and let out all of the emotions of the day... She looked over at me, half asleep, and said, 'I Love You, Mommy.'  Nothing in the world could have made me happier than hearing that.  :)
Her and Lil are just total perfection.  There isn't a day that goes by where I don't catch myself staring at them and wondering how I got so incredibly lucky.

Here are some pictures, including today's x-ray.

Over and out, from the harsh winter of Arizona... (73 degrees and sunny... it's been rough.)
;-)  


This sums her up.  Full of life and so beautiful!

The loves of my life!
Lucy in her Christmas play at school. She was a cow at the stable for baby Jesus' birth.
Lily's first Christmas 

My 2 princesses
This was on her 3rd birthday.  We took her to Butterfly Wonderland and out to lunch
She got her 'Tummy Stuffer' dog for Christmas.  All is well with the world now that she has this thing...
Her birthday party at school. Do you know that out of all the toys and cake and partying... the BEST part of her birthday was to be able to wear the king hat at preschool...
Her party at gymnastics with her buddies
Lily has the life, huh?!



Waiting for Dr. Segal... Lily eating as always :)

My ONE year old on the 19th of January! I can't believe it's been one year


At McDonalds celebrating


Pic on right was in June 2013, post surgery dega osteotomy.
Pic on left is today... Notice the 'cup' of the pelvis looks rounded and deeper?  YEPPP!!!!!


Monday, October 7, 2013

Giveaways

So much to share!
I have been MIA for awhile on my blog... Been super busy with the little ladies, and finally... FINALLY enjoying some outside time here in sunny Arizona!
Let's get right to it.

I have been asked to be the Parent/Child advocate for the amazing parent-run organization, ONE HIP WORLD.  Honored is an understatement!  Since accepting, I have been busy as a bee trying to fight for hip kids everywhere... even if it's something small, it can mean so much to a family!
With that said- I wanted to share a few things that we are doing.

CastCooler Giveaway- This may be the most amazing product for a spica cast.  Honestly.  I don't know what we would have done without it.  The owner has teamed up with One Hip World, and donated 30 CastCoolers to us to give away!  You heard me right!  Pretty cool, huh?!  




Ivy Rose Spica Chairs- another must have!  The owner and creator, Stephanie, is doing a quarterly giveaway of a spica chair to a family!  This chair and table saved our life and provided Lucy with the chance to have a tad bit of freedom.  She ate in this chair.  She played and colored.  She rocked back and forth.  It was a lifesaver!



This was Lucy after her first surgery in her Ivy Rose chair!  AW!

Snug Seat.  This is the company that sells the Britax Hippo Car Seat.  Usually this car seat is loaned out to families via their hospital, but unfortunately, we have word that a lot of hospitals don't have any in stock to loan.  Parents are stuck with a big bill for a car seat to get their casted child around in.  The regular retail price is $500, and with the promo code, they will be $400.  20% off!  It's still expensive, but every little bit helps!  (Promo Code to come asap!)



The Parent's Guide to Hip Dysplasia book. Author and friend, Betsy Miller is simply amazing.  This book covers everything you need to know as a parent of a child with DDH.  Betsy is offering to donate copies of the book, as well as free ebook downloads!  WOW!  Still finalizing details. More to come!
That's going to be great for our overseas friends, who pay a lot in shipping costs.




Amazon.  One of my favorite online shopping sites.  One Hip World has become an Amazon affiliate and is now receiving 4-6% back on all purchases made through this link.  You HAVE to enter and purchase through this link only.  I am now going to order everything on Amazon!  Diapers, baby food, household items, etc... We also get extra percentages if someone signs up for Amazon Mom or Subscribe and Save.  With Christmas coming up, we could really raise some serious funds!  If you have a facebook page or a blog, please link up and support One Hip World with this link!

HERE IT IS:  



Boba baby carriers.  Another great partnership from one of my favorite baby items.  Boba carriers are hip friendly and simple to use.  You can read here about my love for Boba!  They are sending me a few donated carriers to give away, and I am in talks with them of a promo code for us!  Hip Hip Hooray!
More info on how to enter soon.

Another cool thing I have just found and started using is called Receipt Hog.  What is it?  It's an app for your smartphone.  You snap photos of grocery receipts, including Target/Wal-Mart, all grocery stores, drugstores, and dollar stores.  I even snap pics of my receipt from Starbucks at Target.  Since it's at Target, it still counts!  You get points for each receipt submitted.  The company will send you a check once you have reached a certain amount!  It may not be a ton of money, but if we can have 100 people do it, sign over and mail their reward checks in to the IHDI, we could raise a lot!  So download the app if you can!  Super easy to use.  How they can do it is this: they track your age and area and see what you buy, then sell that info to marketing companies.  Great way to earn some do-rey-me.

So you know you can't get away without seeing a few pics of the babes, and hearing an update. :)
We are all doing great right now!  Lucy is still in physical therapy, and making improvements weekly!  She loves her preschool, and is going to be doing a walk a thon at the end of the month.  (sniff sniff!)  
Lily is perfect in every way, just like Lucy.  Bias?!  Nope.  It's true.  They both are simply perfect.  

I am so happy to be the parent/child advocate for an organization like One Hip World.  It's so dear to my heart, and I am ready to tackle this head on!

Thanks for reading, and let's kick some hip dysplasia butt! 

This is why Amazon is going to be so great for us!  NO MORE MALLS!  



Yep, that's my baby on the ferris wheel. She lasted about one minute then said DOWN!


I melt every single time I see this!  Preschool pic!
My little darlings after our 'spa day!'

Saturday, September 7, 2013

Guest Post: Tamara Hansen's JOY


“She will never have normal hips, but we can help her so she can do normal things.”  

Those are the words our beloved orthopedic surgeon said to us said softly to us as we talked over Joy’s bed in the recovery room after her last surgery.   It also words that I have replayed in my head over and over again since.  Right then I let the actual details of the surgery, and the previous ones, all slip away from my mind.  All the tears, heartache and fear kind of just melted into a puddle.  It wasn’t about looking over x-rays, or trying to understand the mechanics of her hips, or talking about what comes next.  His words right then summed it all up.  I found it comfort in his confidence and peace in his simple way of putting our journey in perspective.   We aren’t done.  She will never be free of this.  Yet, we will stay the course.  We will do whatever we have to do to give her “normal”.

He went a little bit further and talked about “playing sports and having babies” as examples of things he’d make sure she could do.  Wow.  What a sigh of relief, yet how terrifying too!

Of course I want her to feel capable of to running a marathon, joining the soccer team or whatever she makes her feel healthy and happy.   Having babies, that’s hard one to think about when she’s only in preschool, but sure I want her to be able to do that if she chooses also.  It isn’t about scoring the goals, being the fastest or giving me grandchildren.  It’s about her having the opportunities to do whatever brings her satisfaction.  Isn’t that all any of us really want for our children anyway, is for them to be happy? 

So, as I replay this message he gave us in my head I think about just that.  I think about how even though this has been one hard road and I hate to think about that we have more surgeries ahead,  that it will be all worth it.  It will be worth as it to know that as she grows up she may have to work harder than some, but she can do whatever  she wants to do.  That hip dysplasia is not stopping her.


Of course, I will always be her number one cheerleader, that’s my job as her mother.  On the outside looking in I am sure I will always be the loudest, most energetic and embarrassing mom on the sidelines.  Yet, on the inside I am terrified of letting her be normal.  It’s hard to admit, but it’s painful for me to watch her do some of the things other kids do.

I have not taken her back to Mommy and Me gymnastics since before her last surgeries.  Instead we play Yoga, gymnastics and dance class at home where I get to be the teacher according to my own comfort level.  When we’re out – just us, with friends or with our play-group I am constantly fighting the urge to hover over her on the playground – and those hips.  
Often the urge wins and I am spotting her as she climbs, asking if her anything hurts and holding my breath as she plays if not I am not in arm’s reach.   I hate that I am always following her, and I do try to keep a distance to give her a healthy space, but I am terrified to let her just be for long.  I have a few close friends that I trust to watch her while I nurse the baby, run to the restroom or grab something from the car but even that is hard.  It’s so hard to let go of the worry. What if she falls?  Will they see if she is wobbly and help her up?  What if one of her legs gets stuck or pulled?  What if she tries to do something her hips aren’t strong enough to do?  What if another kid grabs her by the legs?  What if she doesn’t tell me if something hurts?  What if whomever is watching her doesn’t  know her history?  What if they don’t understand?  What if they think I am just one of those “helicopter parents”? 

My mother always told me “what ifs” will make you crazy.  Okay, so I am crazy.   I  I don’t want to be like this.  It’s not healthy for any of us.  It’s hard though.  One of the hardest things I’ve ever to do.  Some days are worse than others, some playgrounds scare me more than others, the dynamic of some kids play concerns me more.  Sometimes I feel  more trusting, more secure and more brave that she will be okay.  That she knows her own limitations.  Then other times, if she is following someone around, I am terrified that she is going to try do what they are doing - but they don’t have hip dysplasia!  I am really working on this.  It’s a huge struggle for me right now. 

Especially that she just started preschool a few weeks ago.  We are doing a co-op so I work there once a week and she has a drop-off day once a week.  We have yet to do the drop-off.  I have written on her paperwork about HD, she really doesn’t have any restrictions but we don’t want her pulled by the legs.  I have talked to the teacher a little about her history and there are a couple of friends/moms there that know us well.  Yet, I am still so nervous.  I have been so tempted to tell everyone of them our story.  To please, please watch her extra carefully.  I had goose bumps when another mom stood up in front of all the parents at a meeting and asked them not treat her son who is going through his own orthopedic issues any differently.  I was in awe of her.  There was no way I do could do that. It was hard enough for me not to stand up and share our story and ask them to make sure they didn’t let anything happen to my baby girl and her precious hips.

But, I didn’t and I am not going to.  I am trying to let her just be a normal kid as much as possible.  As much as I want for her to have strong hips and be pain free, I equally want her to have a healthy amount of confidence and trust in her own abilities.  If I keep hovering over her and trying to keep her from feeling independent, than why I am putting her through her surgery after surgery?  Isn’t the whole point so she can “do normal things”? 
We have our big follow-up next week.  We have not had an appointment and x-rays since January, when she got out of her brace after 13 weeks in it full-time following her pelvic osteotomies last fall.  The bone grafts were looking great then, she started walking the same day and now running even better than before.  We do have things to talk over with our doctor, but he has assured us we deserve some successes along the way and we are on a break for a few years now.  Praying this stays the same.  Also praying for some positive news on the AVN front, that maybe some blood supply is returning to the femoral heads.  Of course I am in the midst of the week before an appointment anxiety big-time right now, so I am also replaying those words more than ever.  “….so she can do normal things”. 
Who knows, maybe she will take after me and be much more interested in getting elected for student government than trying out for the gymnastics team anyway?